Improving the lives of people with
Primary Immune Deficiency
Hello
We are UKPIPS, the Primary Immune-deficiency Patient Support Charity.
We’re here to make sure that anyone with a Primary Immune Deficiency (PID) or a Primary Antibody Deficiency (PAD), their carers and friends, has somewhere to turn to for advice and support.
Our website gives information on the charity and on PID and PAD and their treatments that can be understood by all.
We have informative factsheets covering a variety of subjects that can be viewed here.
We promise to respect any personal information that we hold and to keep it safe – our Privacy Statement can be viewed here.
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Supply of Immunoglobulin products in England
Dear UKPIPS member, We are writing to you to advise you of some recent changes that NHS England (NHSE) has made to the supply of Immunoglobulin products in England. We were made aware in December of last year that NHSE had spent much of 2024 tendering for a new framework contract for Immunoglobulin products and… Continue Reading
UKPIPS HELPING TO MAKE HISTORY!
After more than 25 years, plasma medicines made from UK donors are being used to treat patients again. This is a brilliant step forward for people living with rare diseases, immune deficiencies, and critical conditions. From today (6th March 2025), many patients who rely on immunoglobulin will access UK-sourced treatments. Supplies of albumin medicine will… Continue Reading
December 2024 newsletter is here
The Issue 2 newsletter for December 2024 is now on the website. It includes Welcome from your Trustees, New Trustee Introductions NHS News Winter Vaccination Programme for each region See the newsletter here Continue Reading
Call for Volunteers and potential Trustees
UKPIPS has been through some trustee changes this year. With Margaret Fuller having retired from the charity, after many years of support as both a trustee and volunteer and with Paul Harries and Erald Kuniqi standing down, we now have a completely new management team comprising David Cohen, Sue Dimmock and Gary Narborough. Sue and… Continue Reading
NHS England – ACCESS TO LATERAL FLOW TESTING/DEVICES IS CHANGING
This is to let you know that if you live in England, from 6th November you will no longer be able to order or receive lateral flow devices by going online or through calling 119. NHSE released the following statement on 31st October: How to get hold of COVID tests If you’re eligible for COVID-19… Continue Reading
Pat McDonald and her Sainsbury’s superstars
UKPIPS would like to send a very big thank you to Pat McDonald and her Sainsbury’s Veterans friends who raised £120 for UKPIPS on 1st August by holding a raffle, bring and buy, tea and cakes morning. As a charity we rely on donations, so fundraising efforts like this are a great help in keeping… Continue Reading
UKPIPS is grateful for the support of Takeda
UKPIPS is a Registered Charity in England, Scotland and Wales – Charity Numbers 1148789 and SCO44636 UKPIPS is a Company Limited by Guarantee Number 7957558